This is one of the craziest Gaps in Communication from Kaiser to Family of one whom is transitioning.
condensed review of 4.5 posts: Faith can hear, feel touch and vocalize. Fri Apr 5 Day 9 4:40pm
I learned this today because faith let a slight vocal tone when I kissed her forehead.
WHAT? since last night she has had awareness. Now it's 4:40pm Fri
I thought she was knocked out cold by 5 mg / hour Morphine. On comfort care. 15 liters oxygen
Nobody ever told me she could hear me and feel touch.
WHY DID THEY NOT MENTION THAT? REALLY ! WHY? OMG
Fortunately I've been holding her hand, kissing her forehead, telling her I love her the whole hospital stay. inluding since last night
so I asked the Nurses
- - - Both Nurses are Indian so it is no surprise that they both say “They can hear” “They know” " just talk normally”, "play them music”
i wish i could hold this moment forever but i am offering the peace and space to let go when she wants.
Faith is breathing quiet mode now, snored a little. so i am quiet now. to let her rest at 6:15pm Fri eve.
Must pause and allow her comfort and rest. so i will lay on couch. as quiet 6:30pm
oops looks as though 5pm letter not sent here :
- - - Fri Apr 5 Day 9 4:40pm - - - email #11 Faith does actually respond to my touch and speech now
surprise out of the blue
Faith does actually respond to my touch and speech now. 16:30
Faith can hear and respond to touch. to words to love. to a stroke of the hair.
she offers faint breath, a sigh, an exhale. only when i touch her or tell her i love her.
though it is a soft utterance, it is clearly different than when you are not speaking to her and not touching her.
so i told her i love her, that she has done everything she can do, a great job of raising 3 boys
and that i wish her to be in peace, to enjoy her journey, to let go when she wants. i love you
i kiss her forehead and say ‘Mrack’ Abigail loves you and she responds. as if Abby would head-but her with love
Indian RN was right. she can hear
I learned this today because faith let slight vocal tone when I kissed her forehead.
MD said "she is not part of this conversation" so I assumed Faith was gone.
I had no idea. I wish someone had told me earlier :O
Faith is love